A day of progress

Josh had a really good day today.  The highlights of the day were:

• His arterial line (which watches his blood pressure) was taken out, and his PICC line was pulled back a bit, so that he would be more free to move his left arm.
• His lungs looked better on chest x-ray and he was not needing the support of the ventilator, so he was extubated.  He is now on nasal CPAP (Continuous Positive Airway Pressure) to help keep his lungs expanded and he is breathing on his own.
• He has had no more apnea in the last 24 hours.
• Mom and Dad both got to change diapers today, which was very exciting for everyone.
• Josh received his first meal of breast milk through a feeding tube.
• Mom is able to pump more milk today, which gives Josh a little store for later.
• Josh is off of most of his medicine, including his antibiotics,and is only receiving IV nutrition and caffeine at this time.  
• Josh had a great nurse today who was very helpful and kept Mom and Dad informed of what was going on and things to look forward to over the next few months.
  

 Overall, we were overwhelmed with the progress that Josh is making. We were told numerous times today that he is a little miracle baby because he is doing so well right now.  We were also told that there will be set backs and to not be discouraged because he is doing so well. We are very thankful for the helpfulness, thoughtfulness and prayers of our families and friends as we begin this marathon adventure.

Prayer Request:

1. Josh would continue to do well on the CPAP and would not become tired and require intubation again.
2. That the food that he is receiving would nourish him and help his GI tract get moving and not cause any infections.
3. That the feedings would stimulate Josh to poop, which will help with the jaundice. 
   
4. Josh's jaundice would continue to stay that same or improve with the bili lights.

Praises:

1. Josh is off of the ventilator and breathing on his own.
2. Josh is "eating" breast milk and didn't have to have formula.
3. Josh's heart and blood pressure are doing well and he isn't requiring any additional support.
4. Josh is off of his antibiotics and has no signs of infection
5. Mom and Dad got a good nights rest last night and got to interact with and care more for Josh today.
6. The outpouring of love and support we have received so far, including having meals delivered, which has helped to decrease our stress levels.

(Josh after extubation - isn't he beautiful!)

(Dad changing his first diaper)

(Josh under the bili lights, being comforted by Mom)

(Josh with his CPAP (looks more uncomfortable then the ventilator doesn't it).  Note is leg thrown over his little nest - that is his favorite way to sit. Also, the bubbles at his mouth is caused by the CPAP.)

(Mom changing a diaper)