Saturday, December 26, 2009

Christmas continues...

Josh  has continued his string of good days today.  His CPAP settings were reduced from 10 breaths per minute as a backup to strictly spontaneous, which means that Josh is breathing completely on his own, with only positive pressure applied by the CPAP machine.  He has had those settings since 8:00am this morning, and only had two apneic episodes since then (almost 12 hours), one of which came after a feeding.  The doctors are also talking about possibly putting Josh on a high flow nasal cannula (which is the next step down from the CPAP) in the next few days to see how he would do. The high flow cannula provides some pressure to help keep his lungs open, but he would be doing more of the work himself.

Josh is tolerating his feeds very well, and is up to 6 ml per 3 hour feedings.  Josh is getting to be a big boy, with his weight now up to 1205 grams (2 pounds 10.5 ounces).  Josh has gained 12.5 ounces since his lowest weight a week after being born.  They have started weaning his IV nutrition again, decreasing it each time his feedings are decreased.

He is looking pretty good overall, his color is good and he seems to feel well.  His labs are all looking good.  His hematocrit was decent, but because there was dedicated blood for him set aside, the doctors decided to give him another unit of Uncle Matt's blood.  More blood also means a new IV for Josh, this time it was placed in his right hand.  Josh's platelet count (the part of you blood the helps with clotting) has been elevated, which could be the result of his infection.  The doctors said they will continue to monitor this over time since prior to his infection it was normal.  His white blood cell count has decreased by half, which is an indicator that the antibiotics are working well.  The final measure of infection/inflammation in preemies is the CRP.  Josh's CRP has been elevated his last two checks on the 21st and 23rd.  It will be checked again in the next few days and should hopefully show signs of improvement.  Josh continues on his antibiotics and will do so for at least 14 days from when his infection was found. 

Other than that, little Josh slept most of the day, and Mom and Dad continue to get rest. Josh did manage to wake up for a short period of time while Mom and Dad were visiting.  It is normal for him to be a bit more tired as his body is being asked to do more.  Mom looks like she may not be getting sick, while Dad is in the middle of a decent cold (with sore throat, runny nose, clogged sinuses, etc).  Dad was only allowed to go in and see Josh for a few minutes with a mask on, and Mom was only allowed limited physical contact and wore a mask just to be sure.  Josh so far does not look like he has picked up anything from his Mom or Dad, which is good, and the antibiotics that he is on seem to be working well.  Mom and Dad are continuing to limit their time with Josh, even though they would both rather be with Josh, to minimize the likelihood that he will pick up Dad's infection.  Hopefully we will be back up to full visits within the next few days.  In the mean time, we are keeping the phone lines at the NICU very busy keeping up with our little man.

Mom and Dad were thankful to get to celebrate Christmas today with Grammie, Grandpa (Mom's parents) and Uncle Matt.  They made a great dinner and showered Josh with many gifts...we got some nice things too.  It was nice to get to spend some good time with family.   Mom and Dad spent time skyping with  Mimi, Poppy, Uncle Nick and Aunt Anita, Uncle Steven, Aunt Cristina, Luke and Jared yesterday.

Prayer Requests:
  • Josh continue to do well on the CPAP with spontaneous breathing settings
  • Josh continue to tolerate his feedings well, and make it up to full feedings soon
  • Josh continue to gain weight steadily and consistently
  • Josh's infections continue to clear up, and that he not get sick or develop any new infections
  • Mom not get sick, and Dad get better quickly
  • Mom continue to pump well and her milk supply increase to meet Josh's future demand
  • Mom and Dad get good rest
Praises:
  • Josh is on spontaneous breathing settings on his CPAP
  • Josh is having very few A's and B's
  • Josh's color is very good (after being very pale earlier in the week)
  • Josh was able to receive another blood transfusion - thank you Uncle Matt
  • Mom and Dad are trying to get some rest while they are on limited visitation
Limited Visits = limited pictures....sorry!


 (Josh trying to sleep when Mom and Dad arrived.  The blue things are suppose to help keep the CPAP from biting into his face.)

 
 (Josh taking a peep at the Mom and Dad while enjoying his dinner)

 
 (Uncle Matt visiting with Josh before returning to Seattle.  Josh says "thanks for the blood favoritest uncle o'mine from Seattle".)


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