Josh has had several doctors appointments in the last few days. On Monday we saw his pediatrician, where he weighed in at a whooping 6lbs!! We are very proud of our little guys and his fabulous weight gain. Our pediatrician continues to be concerned about his hemangioma and has decided to order an ultrasound to evaluate it. As we explained last time, it is possible the hemangioma is sign of a tethered spinal cord, which would require surgery to fix. Because an MRI would be hard on Josh (he would have to be sedated and intubated), we all decided that and ultrasound would be the way to go at first. If it is inconclusive, then we will do an MRI. We are thinking he will go sometime next week to have this done, although we are waiting for the appointment to be scheduled. Otherwise Josh is doing great and we won't have to go back to see her for two weeks when we get his synagist shot (to help prevent RSV) and a CBC (to check his blood counts).
We also had our follow up in Neonatology clinic yesterday. They were very impressed with how well Josh is doing. He has been doing well with his monitor, with his last recored bradycardia over a week ago (and his heart rate was only 79, which barely makes criteria). Since he has done so well, Josh only has to wear the monitor at night time now. This is a huge blessing to not have to cart the monitor with us every where we go. They will read the monitor again at home in 10-14 days and if he is still doing well, we can stop using it! Josh also had his circumsicion yesterday, which was tramatic for all, but he is healing well.
Today Josh saw the eye doctor again. She said that the retinopathy of prematurity (ROP) in his right eye is completely gone!!! This eye is now maturing normally. The left eye still has some retinopathy which appears to be regressing. They will continue to follow up very closely and we have another appointment in 10 days.
He is continuing to do well with nursing and we have begun to wean his formula down. We have decreased it twice now and are keeping a close eye on his weights at home using a loaner scale. We want to be sure that he continues to gain weight well and have plenty of wet diapers too. He continues to do well with the weaning of the thickener, although we have been stuck on the final stage of weaning for a few days now. We are hoping we can finish weaning him this week, if he can tolerate it. Josh's Mimi is staying with us for a couple of weeks to help out, and is having a good time getting to know Josh.
Josh's little personality continues to develop and it is fun to watch. He has decided his favorite time for an awake time is 4am. While he is wide awake Mommy and Daddy are barely hanging in there. We are hoping he will get better adjusted soon. Josh continues to be a cuddle bug. His favorite place to take a nap is curled up on Mommy or Daddy's chest. We have to admit, we love it has much as he does. We have been enjoying showing Josh off to our friends and family. He is a cutie!!
Prayer Request:
- Josh's utrasound show no connection between his hemangioma and spinal column
- Josh's ROP regress totally in his left eye
- Josh continue to gain weight well while being weened completely off of his formula supplement
- Josh sleep well, especially at night when Mommy and Daddy also like to sleep
- Josh heal up well from his circumcision
- Josh now weighs 6 pounds!
- Josh has been home for 2 weeks!
- Josh now only has to wear his monitor at night
- There is no cuter baby in the world!
(Miss Joanie visiting with Josh)
(Mr. Ken and Miss Priscilla enjoying Josh's pirate face)
(Josh in his cute snugglesaurus outfit)
(Josh enjoying some time with his Grammie... I think she enjoyed it too!)
(Josh no sure what to think about his bouncy seat)
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